Over the Moon
The annual celebration of Valentine’s Day will soon be upon us. Images of hearts, cupids and candy imprinted with words of devotion...
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johannec189
Dec 31, 20212 min read
Perception, Symbolism, & Autism
My son received a doll as a Christmas gift this holiday. As he pulled the paper off the box, he began to turn it into an upright...
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johannec189
Dec 26, 20212 min read
Reflections, Stardust & Possibilities
Many I’ve talked to end the year 2021 exhausted. Time seems to have flown by and yet we still feel like we’re all treading water; stuck...
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johannec189
Dec 1, 20212 min read
Giving, Receiving & Acceptance
With the holidays quickly approaching, I took a moment to reflect on all that has happened since 2020. Our world had been knocked out of...
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johannec189
Oct 20, 20212 min read
Aging, Autism & the Autumn of Life
Autumn brings the brilliant color turning of the leaves and a cornucopia of harvest. It’s a time to slow down and prepare for longer,...
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johannec189
Aug 24, 20213 min read
The Lost Phone
My whole life was in that phone. I panicked. My son was supposed to come home the following day and now I had no communication, cut off...
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johannec189
Aug 22, 20211 min read
Transitions
As we move through these last days of summer, I think of all those special needs students who will soon venture out into another school...
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johannec189
Aug 12, 20212 min read
What Do You See?
I sat in my garden with a couple of friends surrounded by flowers, a birdfeeder and an arbor covered with years of wisteria that had...
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johannec189
Jul 28, 20212 min read
New Vibrations
In 1964 I was nine years old. The Beatles had landed in America and we all watched history in the making as “I Want to Hold Your Hand”...
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johannec189
Jul 15, 20211 min read
Generations
Sixty-six years ago, my mother gave birth to six and a half pounds of me. I thought about my mother, her mother, those who came before...
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johannec189
Jun 25, 20211 min read
Words...
Fifty-five percent of all communication is nonverbal, words comprise only seven percent of the whole. Yet words are powerful. They are...
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johannec189
May 31, 20212 min read
The Music Lesson
It was the summer of 2016. I had just returned home from a James Taylor concert held in Portland Maine. A friend had invited me to go on...
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johannec189
May 7, 20211 min read
A Special Mother's Day Toast
Here’s to the mothers of children with special needs whose patience, perseverance and love make a difference every day in the life of...
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johannec189
Apr 22, 20211 min read
Flashback 1973
And there we stood, not yet 18, on the threshold of the unknown, of infinite possibilities. Childhood friends stepping out on a journey...
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johannec189
Apr 13, 20212 min read
CHOICES: The ongoing dilemma of families living with autism.
(original blog post written August 2015) While recently clearing the basement clutter and sorting through boxes of papers, I came across...
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johannec189
Apr 9, 20212 min read
Follow the Sun
I had just come off of six days of caregiving; a whirlwind between my son’s home visit and my mom’s unexpected needs. My house looked...
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johannec189
Mar 31, 20212 min read
CHOICES
“CHOICES, why did you choose that title?” said the moderator addressing me. I was in the middle of fielding questions after a book...
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johannec189
Feb 27, 20212 min read
The Value of Time
Ian 20 years ago on his 8th birthday. It was around this time last year that my son was due to be scheduled for his regular home visit;...
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johannec189
Feb 12, 20211 min read
The Universe: one song
We live in a time when we’re all asked to stay apart for our safety, for our family’s safety, for the safety of one another; we remain...
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johannec189
Jan 30, 20212 min read
The Magic in Giving
It was a late August morning in 2019. As I ventured out on a walk down the bike trail, I saw a boy along the path. He was standing behind...
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